Emily Henkle¹
Biography
Emily Henkle is an epidemiologist, assistant professor, and Epidemiology PhD program coordinator with over 10 years of experience on research related to pulmonary disease. Her current research focus is chronic nontuberculous mycobacteria (NTM) pulmonary disease and bronchiectasis. Her patient-centered work spans epidemiology/pharmacoepidemiology, clinical trial design, patient-reported outcome (PRO) measure development and use, and health-related quality of life related to symptoms and treatment. She approaches her research with both the individual and public health in mind, producing data on disease burden, incidence, and natural history of disease.
After completing a K01 award, in August 2023 she was awarded an NHLBI-funded R01 multi-site cohort study that will enroll patients with NTM pulmonary disease and collect patient-reported symptom, adverse event, and health-related quality of life over time. The primary objective is to evaluate PRO measures as a tool to monitor disease activity and treatment tolerability. Other ongoing projects include an FDA-funded contract to develop a PRO for NTM pulmonary disease for use in clinical trials (PI), a PCORI-funded randomized pragmatic trial (co-I, Winthrop PI), overseeing data analysis for the Northwest NTM Biobank, and participating in an SPH/SOM sickle cell research collaboration to use Oregon all-payer, all-claims data to describe sickle cell disease in Oregon.
Prior research interests include statewide NTM surveillance with Oregon Health Authority, global burden of pediatric H. influenzae and pneumococcal infection, infant influenza and breastfeeding, and adult influenza in healthcare workers.
Education, Degrees
M.P.H., University of California Berkeley, 2000
Ph.D., Johns Hopkins Bloomberg School of Public Health, 2010
Awards and Honors
- 2007-2010, Pre-doctoral fellow, NEI Clinical Trials Training Grant
- 2016, Junior Investigator Award, ATS/ALA
Research
- (Henkle) 01/01/17 – 12/31/18. American Thoracic Society/American Lung Association of the Mountain Pacific. Health-related quality of life as a clinical trial endpoint for nontuberculous mycobacteria disease. Role: Principal Investigator.
- 1013-OHSU (Henkle) 05/01/15 – 04/30/16. Patient-Centered Outcomes Research Institute (PCORI). NTM Research Consortium Stakeholder Engagement and Planning Meeting. Role: Project Lead.
- FD -R-05401-01-A1 (Winthrop) 09/01/16 – 07/31/20. Food and Drug Administration P2 Study of Clofazimine for Pulmonary M. avium Disease IND 125,266 (1/5/2015). Role: Co-investigator.
- CER-1503-29191 (Winthrop) 01/01/16 – 06/30/18. Patient-Centered Outcomes Research Institute (PCORI). Comparative effectiveness and safety of inhaled corticosteroids and antimicrobial compounds for non-CF bronchiectasis. Role: Co-investigator/Project Director
- DS-311495 (Winthrop) 07/01/14 – 06/30/17. American Lung Association Natural History of Nontuberculous Mycobacterial Pulmonary Disease and Immune Correlates of Disease Progression. Role: Co-investigator/Project Director
- 2561-OHSU (Winthrop) 01/01/16 – 12/31/16. Patient-Centered Outcomes Research Institute (PCORI). Non-cystic fibrosis (CF) bronchiectasis patient network and research roadmap. Role: Co-investigator/Project Director.
¹ CEPH Primary Instructional Faculty
² CEPH Non-Primary Instructional Faculty
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